Rare Patient Voice

What is RPV?

Rare Patient Voice is an organization that works to give a voice to individuals and families affected by rare as well as non-rare diseases. RPV connects patients and family caregivers with chances to share their opinions with companies and researchers by participating in research studies — surveys, phone interviews, and online studies. The goal of Rare Patient Voice is to include the patient voice in research and ultimately help improve the lives of patients everywhere.

How is inflow helping?

We are working with RPV to easily and efficiently pay patients and family caregivers who participate in RPV studies. This not only helps to compensate them for their time and effort, but it also helps to build trust and strengthen the relationship between Rare Patient Voice and the patient community.

inflow's payment engine also frees up valuable time and resources for RPV, allowing Rare Patient Voice to redirect their focus towards other important aspects of their research and patient outreach initiatives.